1 in every
1,900 babies born in the UK
have sickle cell disease
We provide support to people affected by sickle cell disease to enable them live normal life.
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Sickle cell anaemia is a disease passed down through families. It is an inherited condition of the blood and it is considered the most common genetic disease. It is a group of disorders that affects haemoglobin. Haemoglobin is the protein, which carries oxygen to the tissues.
Sickle cell disease is not contagious, but is acquired at birth. It occurs when a child inherits two sickle haemoglobin genes, one from each parent.
The disease is caused by a genetic abnormality in the gene for haemoglobin, which results in the production of sickle haemoglobin.
Life expectancy for patients with Hb-SS has increased to a median of 45 years and for HbSC patients to 65 years, a significant improvement from 14.3 years for Hb-SS 3 patients.